Why Connecting With Other Sickle Cell Warriors Was 'Life-Changing’
Sickle cell was never taught or spoken about in my school. When I tried to explain what was happening to the other kids, no one knew what I was talking about ....
Dunstan Nicol-Wilson is from London, England, and was diagnosed with the “invisible disorder” sickle cell anemia from birth. Nicol-Wilson has a BSc in bioscience and an MSc in public health (global health). He has spent his career in research governance and is now a clinical project manager. In addition, he is also a freelance columnist and mentor. Nicol-Wilson began advocating for sickle cell anemia in 2018 through various talks, columns, and community outreach. He hopes his advocacy will raise awareness for sickle cell and blood donation, encouraging others to share their stories. Outside of work and advocacy, he loves to travel, try new experiences, and spend time with friends and family. He can be contacted via Instagram and LinkedIn.
Sickle cell was never taught or spoken about in my school. When I tried to explain what was happening to the other kids, no one knew what I was talking about ....
I choose to accept myself for myself and live a life I want to live without the shackles of what society thinks. I’m on a journey of embracing my true self ...
I wish people knew what sickle cell disease was instantly like other conditions, but that isn't the reality, which can lead to mistreatment or misdiagnosis ...
I had a mixed experience going to school with sickle cell disease. Sickle cell meant I missed more school days than I would have liked ...
Others in the sickle cell disease community have asked me a few times whether it’s wise to disclose having sickle cell when applying for a job ....
Exercise has been a double-edged sword for me with sickle cell disease. On the one hand, it's great because of the vast benefits ...